Registry Overview

Si desea recibir esta información en español, por favor llame al 1-866-382-6813.

What is a voluntary registry? A voluntary registry includes a group of people who have something in common and have agreed to have their information used for a specific purpose.

What is the Forteo Patient Registry? The Forteo Patient Registry is a voluntary registry and includes people who have taken Forteo at least once. Everyone who has signed up to join this registry has agreed to share a small amount of information about themselves. This information is then used to collect more information about the long-term safety of Forteo, specifically the possible risk of osteosarcoma.

Who can sign up for the Forteo Patient Registry? Anyone who has taken Forteo, even once, can sign up to join the Registry if they are at least 18 years old and live within the 50 United States or Washington, DC. (Residents who live in US territories such as Guam or Puerto Rico currently are not eligible to participate in the Registry.) Whether or not you decide to sign up, you can still get Forteo at a pharmacy of your choice, just as your doctor prescribed.

How do I sign up for the Forteo Patient Registry? The entire sign-up process will take no more than 3-5 minutes of your time. You will also receive $5 to thank you for your time. Once the Registry forms are completed and returned to RTI International (RTI), you will not be contacted again. Sign up.

Who is running the Forteo Patient Registry? RTI, a nonprofit research company, will be running this Registry on behalf of Eli Lilly and Company. Eli Lilly and Company is the sponsor of the Registry and is the company that makes Forteo.

Will my personal information be protected? Your personal information, including any data that can directly identify you, will not be shared with Eli Lilly and Company or anyone outside the research team, without your permission.

How does the Forteo Patient Registry work? If you sign up to join the Registry, you will be asked to provide some information about yourself, answer a few questions about how long you've been taking Forteo, and sign an informed consent form. When patients sign up for the registry, we take the information that is provided and store it in a secure database at RTI. We then send this information to state cancer registries. Cancer registries are located in every state and are required by law to keep information on every newly diagnosed case of cancer in their state. If you sign up for the Forteo Patient Registry, we will link the information on your registration form to participating cancer registries every year until the year 2021. We will use the results from the participating cancer registries to find out whether patients who take Forteo have a higher chance of developing osteosarcoma. Remember, joining this Registry does not mean that you have this bone cancer (osteosarcoma) or will get this bone cancer.

Pre-enrollment form

Frequently Asked Questions

If you would like to talk to someone about the Registry, you may call RTI International and speak to an RTI Registry team member at 1-866-382-6813, a toll-free number.

If you have questions about Forteo, please contact Eli Lilly and Company directly or talk to your doctor. You may contact Eli Lilly and Company by calling 1-866-4FORTEO (1-866-436-7836) or visiting www.forteo.com.

You can find additional information about Forteo in the Forteo medication guide and the Forteo prescribing information.